Stakeholder-Driven Patient-Centered Research Agendas and Evaluation of Emerging Interventions in Long COVID
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About 21 million people in the United States exhibit long COVID symptoms resulting in reduced quality of life, diminished productivity, and further exacerbating health disparities. This session will highlight ways stakeholder engagement is driving patient-centered long COVID care, including innovative ways patients have been engaged in research, emerging therapies, and symptom management strategies, as well as the impact of novel health system models and care delivery methods to address long COVID. In addition to discussions that will draw insights from two current ongoing/recently completed PCORI-funded projects identifying promising areas of future research, panel discussions will include both patient and provider perspectives on managing long COVID symptoms.
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Session Resource Links
Emerging Technologies and Therapeutics Report: Interventions for Long COVID
- Project Page: Emerging Technologies and Therapeutics Reports: Interventions for Long COVID -- A Scoping Review | PCORI
Using Body Mapping to Develop a Patient Centered Research Agenda About Long COVID-19
- Project Page: Using Body Mapping to Develop a Patient Centered Research Agenda About Long COVID-19 | PCORI
- Publication: A Methodological Guide for Researchers Using a Health-Affected Population as an Example
- Full virtual gallery: COVID Body Mapping Virtual Gallery
- Full research agenda: Patient-Centered Outcomes Research/Comparative Effectiveness Research (PCOR/CER) Research Agenda
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